Advocate means voice, right?

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The calm AND the storm

 

 

 

Once upon a time I was a really judge-y a-hole. I thought I knew everything about everything and this wasn’t even my teenage years. Gaaaaah, I was exhausting. One of the things I knew nothing about but thought I did?

ADHD

Until not only Samuel, but Abraham as well were diagnosed with it. No, scratch that. That’s a lie if I’ve ever told one. I still didn’t know. And quite frankly, it was the beginning of one of the hardest uphill battles I’ve ever fought. Alone but with people, together but on opposite sides of the river. Different but the same words to apply to two of my three boys who just rode the struggle-bus-wave at school something fierce. It was hard to swallow because it was personal and I felt like I had failed them in some way, even though it had nothing to do with me but was about to consume my life. Our lives. Each of us in different ways.

Samuel’s diagnosis, as a Type 1, meaning he has inattention but not hyperactivity, was an absolute dream  in terms of handling it. He was put on a small dose of Ritalin and it was an overnight change, where he went from testing below grade level in every subject to making the honor roll no less than three months later. “He’s not dumb, he just needs a little help,” his sweet fifth grade teacher had told us. Learning about what he needed and why completing homework and turning it in was so hard made a lot of difference in understanding him better. Isn’t that what we all want? To be understood better? He started to gain self-confidence, boosting his self-esteem. You could see a visible change in him, almost immediately but also over time. Not to say he hasn’t had some ups and downs that have needed revisiting and adjusting. Sam still continues to be so much easier to handle.

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So, enter Abraham, who has been marching to the beat of his own drum since the moment he was born. Yesterday he asked me for a picture of that day, and you know what? I don’t have one. He was my fastest delivery, being born less than an hour after I finally got to the hospital because nobody believed that I was in labor and then when the nurse checked me I was dilated to 8. When they told me I couldn’t have an epidural or any other sort of pain meds because I was too far advanced, I broke down crying. I had been trying to keep it together for so long, thinking it would be coming. It wasn’t. He got stuck and the doctor had to help him get his head unstuck and I just screamed in pain. I remember it like it was yesterday, all the pain and commotion, but I don’t remember his face. I hardly saw it. He came early, was whisked out of the room so fast. I had only gotten to hold him for about five minutes and then he was gone but I didn’t even notice because then I was surrounded by doctors and nurses. I was hemorrhaging and they were working fast.

I don’t even know how much time went by before I realized he never came back to the room. And then it was a twilight zone because they started lying to me in ways I would mimic later, when my kiddos asked for something I knew I wouldn’t deliver on. “Maybe in a bit, not right now, etc” kept being fed to me. I remember wanting my Mom there but she wasn’t. Hearing false information in a hospital should be a crime. And you shouldn’t feel alone when you hear it.

****** You’re probably wondering why I’m rambling on about all of this. It’s most likely because I’m defending why I’m so Mama Bear with him. Ku thinks this is why and I don’t think she’s wrong. ******

Not even two hours later, after being told maybe and soon and a whole bunch of other no-in-disguise words, he was off, on a helicopter, to Children’s hospital. See, he couldn’t breathe on his own, he was considered a preemie and they didn’t have what he needed to keep him alive at St. Josephs. And then I was mad, because my doctor wouldn’t release me to go to him. You guys, I was straight up mean to that doctor and he took it like a champ. I’m still not even a little sorry, though.

Skipping forward, he was in the NICU for three a half long weeks where I was by his side day and night, practically forgetting I had four year old Samuel at home, being cared for by my ex’s family. It’s the one thing I’ve ever sincerely thanked them for. I wouldn’t allow pictures in there, not that we had many visitors, which I think I still struggle with, inside. I was so alone during one of the hardest months of my life. He was on a morphine drip, intubated, and not improving for so long. I could hardly take it and yet that’s what moms do; the hardest work and almost always on their own.

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AB and his tia at our wedding, where he unapologetically tore it UP on the dance floor and just lived his life

I still see him, so little and helpless in the incubator, muted and fighting for his life. I was willing his lungs to do their job for so long, and yet I couldn’t make him better. When he was finally home, I would stare at him in the night, convinced that something would happen and he would stop breathing, because joy forebodes fear because that’s what we are taught in the movies.

I taught him baby sign and he was full on signing sentences before he was even eleven months old. He started walking on his tiptoes. He taught himself to read at four years old. He learned cursive on his own, at home, because it was interesting to him. He has a signature, friends. And he’s barely eleven.

He’s also type 2 ADHD. Which means hyperactivity.

It isn’t even what I would consider severe but holy moses, it’s so true for him. He will sit and watch a movie but his body will not stop moving. In fact, from so many talks with his doctor and counselor, he needs the movement to focus his mind. And this has not come without difficulty at school. Difficulty and distractions and distracting. To say it’s interfering with his learning is an understatement, even though he is still so smart.

We’ve been lucky in that a) I believe it. The other side of his family did not. Frick, some of my own family didn’t either. The fact of the matter is that while ADHD has almost certainly been not only one of the most misunderstood medical conditions, it’s also been misdiagnosed and over-diagnosed in many cases. Not in Abraham’s. I mean that sincerely. It wasn’t something we could change with just eliminating things like food dye from his diet. That doesn’t mean it isn’t true. I know that works for some kiddos.

It doesn’t mean that getting more activity in with your little isn’t the answer. It just wasn’t the sole answer for him. It isn’t a pass to just medicate and while Sam was such a big win with his, we have tried so many different kinds, stimulant and non stimulant alike without finding the best helper.

You want to know what one of the biggest helps has been? Having had some of the BEST teachers for him that understood or tried to understand him, that believed in his intelligence and that worked alongside us to help him thrive. It was such a weight off our shoulders to feel like we had an army behind us. Except, fairy tale elementary school is over and we have entered middle school and all its chaos and we are all drowning at our house.

We have entered a season of school struggle in a way we aren’t used to. Yes, middle school was tough for Sam, but it was Sam tough, so that still makes it sort of mild. I call him the meanager and that’s mostly from those rough years because he couldn’t figure out how to excel in school anymore. Getting him to do his homework, keeping him up on his assignments and learning how to actually study were so hard. Now, it all applies to Abraham and we are RIPPING OUR GAWWWWD DAMN HAIRS OUT.

I mean it. It’s been friggin tough as hell. It is straight up square peg, round hole time and all of us are at our wit’s end. I mean, I scheduled a meeting with his teachers and it was fruitless. Unfruitful. Without fruit? I’m saying I walked out of there feeling like I could have gotten more done trying to teach a giraffe their ABCs. It’s no wonder he’s having a hard time. If I feel like they don’t care, I can only imagine he feels like they don’t care because he’s pretty intuitive and you’d basically have to be blind to not see it. I even called, ten minutes after leaving and on my way to work, and spoke to his vice-principal and expressed how wasteful my time there had felt, was promised a call back and action, a commitment to helping him, etc. It was like being in that hospital room all over again, hearing fake news told to my face without an ounce of meaningfulness.

Today, I took my voice back and I Mama Bear’d it because I am not playing around. I don’t want to be that person that loses their patience with their kiddo over something they haven’t figured out how to control yet, because that’s bananas and not right. It’s not cool to get mad at a child with diabetes for having their blood sugar in the wrong numbers because they aren’t directly in charge of metabolizing their glucose and making insulin. <— wait, did I say that correctly? Do you get my drift?

What I’m saying is, if you have a little with either type of ADHD, or if you have ADHD, hear me on the following:

You are smart.

It is real.

You are not defined by it.

Use your voice.

What about if you don’t? You probably know someone who does, so read up a little on it, so you don’t sound like Vee2013 who was just a judge-y a-hole. Don’t tell people it’s made up because it isn’t. And offer some love.

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Abraham in fifth grade, on his way to camp which was a huge stress to us but he did wonderfully

In the throes of teen angst

I often share stories and insights from raising my meanager. People ask about it, reach out to me, thank me for it, you get the gist. Most times, I’m questioned if he really is mean and while the answer may vary depending on how he’s been the day I’m being asked, for the most part, he is not. He has teen moments, has begun his hand at trying to be sarcastic and witty, is becoming slightly moody, and sometimes is just downright pissy. More often than not, he is kind. He is caring. He is reserved.

Raising our meanager has not come with ups and downs, as I’m sure it is for anyone else in our shoes. Every time I was pregnant, I wished on everything and anything that I wouldn’t have any girls. I remember when I was in my adolescents and let me tell you, I could NOT handle myself if dealt the same cards. I was by no means the worst kid ever; I wasn’t a teen mom or became addicted to drugs, I didn’t have loose morals or party all night long at random houses, but I wasn’t an angel and I always thought I knew more than my parents. I had an attitude, I was miserable and made everyone else suffer along with me. No part of that made me want a daughter. Except, having boys hasn’t been balls easy (pun intended).

Having small men is constant energy. They are loving, curious, problem solvers (for the most part) but challenging. Raising boys has been one of the hardest things I’ve ever done. Throw in the mix that we are raising them in a two female household, where neither of us has experienced wet dreams or random erections. Where we don’t understand the voice changing and giggle when the meanager speaks. We ask him questions in front of friends so they can hear the differences also, except he has caught on to that and is refusing to appease us. There’s the new fuzz above the upper lip and the increased body odor smells. We don’t physically and emotionally understand any of these things and yet we are balls deep in them, too.

For the most part, my meanager has been withdrawn. He spends most of his time in his room, where we let him escape the ridiculousness of his younger brothers because we understand he needs space. We ask pesky questions sometimes (read: I do) and from time to time we force him to engage in conversation or time spent with us. If he’s been particularly difficult, like failing a class and not getting his ish together, we might take him to Costco and make him hold our hands (read: me), gush over him and try to kiss him in public. Being a mom can be fun some days, friends. He almost always takes it in stride and knows we love him. We have each taken a role. He talks with Ku when he has girl questions or topics he feels I’ll blow out of proportion (as if that’s even possible). He comes to me when Ku isn’t around, because he’s convinced she’s more chill than I am.

I know, it’s damn frustrating.

And then there are times he sits down and asks me in his serious, sounds like he has a big loogie sitting in the back of his throat voice if he can ask me something. And I see a storm in his eyes that carries some emotional anguish. It could be something silly and yet it’s not for him so I take it serious and brace myself. I never know what’s coming but I know it has to happen.

“Mom, have you ever had suicidal thoughts?”

And there it is, a sucker punch to my side. I’m always on the fence with how real, how honest we should be with our kiddos. I mean Ku and I, because I fully understand every parent will have their own opinion of what is best. Sam is fourteen and I’m not so sure how in depth and raw I can be with him yet. Yes, I feel my chest tightening but I have to say something that makes him feel heard, understood, listened to. I decide to be real for a moment, because I don’t want to lie to my children, ever.

I tell him yes. That I remember being upset as a teenager, feeling like my parents didn’t understand me, didn’t care about me, that I was second to their business and their time. That I was fat and got made fun of, that I never got invited to sleep overs or parties. I wasn’t popular and I wasn’t good at sports. I was miserable a lot of the time and sometimes I thought about ending it all. I didn’t tell him about how I turned to cutting to feel better and have scars that will never fade from it. I keep it short and simple and then I ask him if he ever has.

“Yeah, after you and Dad split. I was really sad and thought I would never see my Dad again,” he shared. That makes sense. I had a protection order against him, he didn’t know our new address or phone number because he had gone from crazy to psychotic in the blink of an eye when I left. He was only allowed to see the children with supervised visits, which he refused to submit himself to. He went a long time without seeing his children and it was all of out selfishness. He wanted to know what would happen to him and his brothers if I died, where they would go if both I and his dad died. Things were clearly weighing on his mind.

When I think back to my decade of abuse in a violent, toxic relationship with their Dad, I find myself at a crossroads. On the one hand, I’m grateful that he never hit me in front of the kids because I can’t imagine what that would have done to my children internally, except on the other I feel like they still don’t fully understand why the divorce happened. Sam continued with the hard questions last night, asking me if I was sad the whole time I was married to his dad, why I didn’t leave sooner, how bad his dad hit me, and why.

“Why would he need a reason, Sam? Wouldn’t that be justifying doing something horrible to someone when really, there is no excuse good enough for hitting someone you said you would love and honor?” I asked him. And his response was unexpected but reasonable. “I’m not saying a reason makes it okay. I just want to know why he did it.” Except, there’s not always a reason. Often times I think he felt out of control so he would pick fights with me and goad me into answering back to which he would explode. Or I wouldn’t meet his expectations and he would lash out. It was many reasons and yet none at all and so how can you fully understand that?

Sam asked me about his dad’s family and how they treated me, he shared what he witnesses of how they treat his stepmom. He asked what brought me to finally leave and I was careful to be honest without unnecessary details. The whole time we talked he had silent tears slipping down his face and I felt like something deeper was trying to surface. Every now and again Sam does this. Just asks me a question out of the blue, with no notice and I never feel like I answer correctly. I always feel blindsided and yet realize it’s an important moment for him. And I always wish there was a manual I could reference because unless you’re prepared for these things, they just leave you feeling inadequate.

Throw in talking with your child about these deep issues you are still working through. He wasn’t done, though. He had looked over our list of attendees on the kitchen table and had seen that my Dad was a no. “Why isn’t Tan (what they’ve always called him) coming?” And when I explained that he wasn’t okay with our marriage, he asked, “But doesn’t he love you?”

It was hard not to tear up with him. Not only was he asking me some of the hardest questions of my life, ones I’ve asked myself a million times in private, he was hitting on some pretty raw situations. Yes, I know my father loves me and I don’t want to judge him on his not coming to our big day. I’ve accepted he won’t be there. I asked him so many times, hoping he changes his mind. He doesn’t comprehend it and for him to attend, he would have to in his opinion, so he can’t bring himself to be there. I get it, because I choose to. And I love him because regardless of our differences in opinion, my ability to love him isn’t hinged on this one moment. Yes, it’s major to me. It’s monumental to both Ku and I. I am simply choosing to try to see things through his lens and agree to disagree.

Last night was tough. Yes, I found being honest pretty difficult, but I also wanted to answer his questions without projecting my own feelings into our talk because I don’t want him to feel how I do out of solidarity or obligation. I want him to hear me yet draw his own conclusions and thoughts without just being upset with his father or my dad. And just finding the bravery alone to initiate the whole thing with me, the one who is less chill, was pretty awesome, regardless of how much I struggled through it. And now, if you’ll excuse me, I’ll be googling how to have difficult yet meaningful conversations with teenagers because shoot me before he surprises me again!

 

My Firstborn

jvvd3880Meet Samuel Alejandro. My self-proclaimed #meanager. He is deep in the throes of the big 1-4 and he loves to pretend he can’t show me ONE OUNCE of affection. Friends, I digress with him.

WHY DOES HE MAKE ME BEG FOR HIS LOVE?

What all do people share about their kiddos without getting SUPES sappy with mom goggles or emotionally outraged over recent shenanigans they may have pulled? And how do you not share THAT ISH since we allllllllll know that the teens are ALWAYS pulling some crap thinking they are smarter than us?

I’m not saying I never did any of that messy teenage stuff. Luckily, my cherry popper blog post isn’t going to be about me as a teenager because my goal is to keep readers. Hahahaha. No. This first one is dedicated to my smelly, soft, emotional, smart but likes to play like he’s not, first-born son.

He really was a sweet little boy. Loved to be hugged and followed me around more than our pooch. He’s timid, scares easy, just WANTS TO BE LOVED and is learning some sarcasm, which has me OH SO PROUD but also ready to smack him. Oh, and let’s not forget he shares a birthday with my own Mother. How many can say they’ve given birth on the SAME DAY as their Grandma!?! Pretty cool, huh?

We are so different.

SO.DIFFERENT.

Where I will talk with anyone about anything, strangers included, Sam is quiet. He’s pensive. He can almost NEVER find his words. If there’s unrest or arguing, he wants to peace keep. Fighting gives him anxiety. Although he’s a terrible tooth brusher, he abhors the dentist. He loathes reading. He is one of those learners who has to see it and do it and experience it a BAJILLION times before he gets it. When he finally understood rhyming in kindergarten, I FRIGGIN CRIED. It took us so much work.

He has taught me patience in a way I never thought I would. Because of Sam, I try to understand people better. Through him, I have learned to stop, listen, try a different way. Being his mother has helped me in my work, my relationship with my wife, who I am as a friend, who I am as a person, and how I mother my other two boys. Through life’s curveballs, turns in the road, unexpected bumps and dives and speed ups, Sam is my constant reminder to slow down a little and breathe and it continues to BLOW MY DAMN MIND how incredible of a person he is becoming.

Damn it. I’m making this emotional. I TOLD YOU.

I will end on this note. HE CAN FART ON COMMAND.

BOOM.